5×1000: Grazie.
settembre 8, 2020
Aimft in diretta su Well TV
settembre 19, 2020La maratona FTD 2020: Around the globe in 24 hours
Around the globe in 24 hours: La maratona FTD 2020
In questo momento di grande incertezza Aimft non si è mai fermata e, come parte della Word FTD United (www.worldftdunited.net), ha deciso di organizzare un grandioso evento web del tutto gratuito e dedicato, proprio nella settimana Mondiale della consapevolezza della malattia, ai caregivers e anche a tutti coloro che, per la loro professione o per circostanze di vita, si trovino a confrontarsi con la malattia Frontotemporale.
L’evento coinvolgerà tutto il mondo. Per quanto riguarda l’Italia, in questi mesi abbiamo raccolto i contributi dei nostri esperti più illustri che si sono messi a disposizione per informarci in modo semplice, ma allo stesso tempo scientifico ed autorevole su tutte le novità In materia. Per il momento ‘save the date’: 3 ottobre 2020 ore 10.00!!!
10:00
Openings & Welcome
ir. Hendrik-Jan van der Waal, chair & founder FTD Lotgenoten, Netherlands
10:10
What is FTD and What do we know
dr. Yolande Pijnenburg, neurologist and chair FTD Expertgroep, VUMC, Amsterdam, Netherlands
10:35
Dr Jonathan Rohrer, Consultant Neurologist and FTD Lead, Dr Lucy Russell and Dr Martina Bochetta, Dementia Research Centre, University College London
11:15
Biomarkers in FTD
Emily Todd, Mica Clarke and Aitana Sogorb Esteve, Dementia Research Centre, University College London
11:15
Q&A Session
FTD Team, Dementia Research Centre, University College London
11:35
The clinical hallmark of FTD: inspiration for biomarkers
Professor Vincenzo Silani, Neurology-Stroke Unit and Laboratory of Neuroscience, Istituto Auxologico Italiano, Milan
11:50
Patients and their caregivers before and after COVID 19
Dr. Antonella Alberici, Neurologist, Spedali Civili, Brescia
12:05
Freek Gillessen, neursing consultant, VUMC, Amsterdam, Netherlands
12:30
Jeroen Bruinsma, MSc, MUMC, Maastricht, Netherlands
12:55
Urvashi Desai, Caregiver Rare Dementia Support, University College London
13:15
Supporting People with FTD, fFTD, PPA and their Familiies
Nikki Zimmermann, Direct Support Team Lead, Rare Dementia Support, University College London
13:35
Molecular bases of FTD: what have we learned
Professor Emanuele Buratti, ICGEB, Trieste
13:50
The present and future therapeutical strategies
Professor Barbara Borroni, Neurologist, Spedali Civili, Brescia
14:00
Developments in the treatment of FTD GNR: Alector’s trial
Dr Beth Ann Haynes, Neurologist, Alector, San Francisco, Usa
14:10
to be specified
Prof. dr. John van Swieten, Erasmus MC, Rotterdam, Netherlands
14:35
Q&A Session
14:50
The importance of international collaboration: sharing knowledge to combact the disease
Professor Eino Solje, neurologist,Kuopio Finland
15:05
FTD & Cognition
Dr Lize Jiskoot, Neuropsychologist, Erasmus MC, Rotterdam, Netherlands
15:30
Pass the baton
We pass the talking stick to the Americas
10:00 AEST
Openings & Welcome
Dr Tracey Wardill
Clinical Neuropsychologist
World FTD United; AFTDA; Neuropsychology Melbourne
Dr Rosa Rademakers
President, International Society FTD
10:05
What is FTD?
Professor Olivier Piguet
Clinical Neuropsychologist
Frontier, Brain and Mind Centre, University of Sydney
10:30
Genetics in FTD
Professor Clement Loy
Neurologist
Westmead Hospital and Frontier, Brain and Mind Centre, University of Sydney
11:00
The Road to Diagnosis – Psychiatric Aspects of FTD
Professor Dennis Velakoulis & Dr Dhamidhu Eratne Neuropsychiatrists
Neuropsychiatry, Royal Melbourne Hospital
11:30
Understanding Behavioural Changes in FTD
Dr Wendy Kelso & Dr Sarah Farrand
Clinical Neuropsychologist & Neuropsychiatrist Neuropsychiatry, Royal Melbourne Hospital
12:00
Speech and Language Changes in FTD
Camille Paynter
Speech Pathologist
Neuropsychiatry, Royal Melbourne Hospital
12:30
The Caring Role in FTD
Daina Fail & Dr Samantha Loi
Social Worker & Neuropsychiatrist
Neuropsychiatry, Royal Melbourne Hospital
13:00
Mirelle D’Mello
Psychologist
Frontier, Brain and Mind Centre, University of Sydney
13:30
Clinical trials in FTD and Recent Research Findings
Jeroen Bruinsma, MSc, MUMC, Maastricht, Netherlands
14:00
You Are Not Alone – Finding Support
Dr Wendy Kelso & Daina Fail
Clinical Neuropsychologist & Social Worker Neuropsychiatry, Royal Melbourne Hospital
14:25
Passing the Baton
Dr Tracey Wardill
Clinical Neuropsychologist
World FTD United; AFTDA; Neuropsychology Melbourne
10:00 EDT
Brief Introductions: ISFTD and AFTD; Frontotemporal Degeneration: Subtypes and Reasons for Hope
Murray Grossman, MD, EdD, Director, Penn FTD Center
10:30
The FTD Disorders Registry: Every Story Advances the Science
Lakecia Vincent, MS, MCHES, Registry Manager
11:00
Title to be confirmed
Nupur Goshal, MD, PhD
Washington University of St. Louis
11:30
Entering the Era of FTD Clinical Trials
Susan L-J Dickinson, MSGC, CEO, The Association for Frontotemporal Degeneration; Adam Boxer, MD, PhD, UCSF Memory and Aging Center
12:00
Intro to FTD Genetics and Genetic Counseling
Emily Dwosh, MSc, CCGC
The University of British Columbia
Vancouver, Canada
12:30
Desafíos en tiempos de COVID en pacientes y familias con demencia Frontotemporal en America Latina (Challenges of COVID-19 and FTD in Latin America)
Teresa Torralva, Frontotemporal Dementia Clinic. INECO Foundation. Argentina
13:30
Manejo de los trastornos conductuales en la demencia Frontotemporal (Management of behavioral aspects of FTD)
Julian Bustin, Neuropsychiatry and Memory Clinic. INECO Foundation. Argentina
14:30
The Lived Perspective of FTD: Discussion and Q&A
AFTD’s Advisory Council
15:00
Rita B. Choula, AARP Public Policy Institute
15:30
“It Is What It Is”, Screening and Discussion with Director Joe Becker
Joseph Becker
President, Thinkfilm
Dicono dell’evento…
Fonte: Giornale di Brescia